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Research Transparency Panel Meeting Summary

Erasmus School of Health Policy and Management (ESHPM)

14th August 2025

Data Access Proposal Request


Flatiron Health UK RWD Products

  • Non-small cell lung cancer


Attendees

Flatiron Health UK

  • Emma Salib (chair)

  • Vanessa Acquaah (programme manager)

  • Philani Mpofu (Lead Methodologist)

Research Transparency Panel

  • Jennifer McCaffery (lay)

  • Hayley Hall (lay)

  • Sonia Patton (patient)

  • Trishna Bhadaria (patient)

  • Shira Peleg-Hasson (clinical)


Conflicts of interest

No conflicts declared by panel


Decision outcome

Approved


Summary of discussion

  • The feedback consistently highlighted that the lay summary was well written   
    and provided a clear overview of the research institution, disease area, and   
    rationale for the study.

  • There was clear potential for the work to benefit patients.

  • The research aims, methodology and benefits were very clearly outlined.

  • The panel raised several comments on other aspects of the application   
    including:

    • The panel enquired about future opportunities to explore similar   
      research in other breast cancer patient populations.

      • It was noted that leveraging real-world data (RWD) in future   
        studies, such as this one, could enable researchers to identify   
        and explore important characteristics of breast cancer in other   
        populations, supporting more inclusive and comprehensive   
        research across diverse patient populations.

    • The group discussed further ideas to unveil overall disease burden to   
      understand patient outcomes (e.g. looking at location of metastases).

    • It was discussed that the researchers certainly had the intention   
      of investigating such areas further and would review this   
      closely.

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