Research Transparency Panel Meeting Summary
Newcastle Hospitals NHS Foundation Trust
12th March 2026
Data Access Proposal Request
Flatiron Health UK RWD Products
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Flatiron Breast Cancer data product
Attendees
Flatiron Health UK
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Vanessa Acquaah (chair) -
Caitlin Clunie-O’Connor (programme
manager)
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Victor Lhoste (Lead Methodologist ) -
Daissy Chica (Partnership Lead)
Research Transparency Panel
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Jennifer McCaffery (lay), Kaeden Bunting (lay)
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Thomas Smith (patient)
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Trishna Bharadia (patient)
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Yanrong Jiang (clinical)
Newcastle Hospitals NHS Foundation Trust
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Yasmin Hassen (Research Lead/Surgeon)
Conflicts of interest
No conflicts declared by panel
Decision outcome
Approved
Summary of discussion
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The lay summary was well-written, providing a clear, easily understandable overview of Invasive Lobular Carcinoma (ILC) and the rationale behind the study.
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The aims and objectives were clearly outlined, making it very easy to see the tangible benefits of the study.
- The project shows a clear benefit to the community, especially in its potential to support more accurate predictions of recurrence for ILC patients.
- The proposal effectively demonstrated that Real-World Data (RWD) can provide vital insights into current clinical practices.
- The panel raised several comments on other aspects of the application including:
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- Further clarification regarding the treatments available to ILC patients and how this will inform the inclusion and exclusion criteria.
- The panel inquired about the methodology that will be used for patient stratification.
- The group discussed the study's potential to shape national guidelines in the future.
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The panel discussed approaches to sharing findings with patients on a national level.
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