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Research Transparency Panel Meeting Summary

Newcastle Hospitals NHS Foundation Trust

12th March 2026

Data Access Proposal Request


Flatiron Health UK RWD Products

  • Flatiron Breast Cancer data product


Attendees

Flatiron Health UK

  • Vanessa Acquaah (chair)

  • Caitlin Clunie-O’Connor (programme

    manager)

  • Victor Lhoste (Lead Methodologist)

  • Daissy Chica (Partnership Lead)

 

Research Transparency Panel

  • Jennifer McCaffery (lay), Kaeden Bunting (lay)

  • Thomas Smith (patient)

  • Trishna Bharadia (patient)

  • Yanrong Jiang (clinical)

Newcastle Hospitals NHS Foundation Trust

  • Yasmin Hassen (Research Lead/Surgeon) 


Conflicts of interest

No conflicts declared by panel


Decision outcome

Approved


Summary of discussion

  • The lay summary was well-written, providing a clear, easily understandable overview of Invasive Lobular Carcinoma (ILC) and the rationale behind the study.

  • The aims and objectives were clearly outlined, making it very easy to see the tangible benefits of the study.

  • The project shows a clear benefit to the community, especially in its potential to support more accurate predictions of recurrence for ILC patients.
  • The proposal effectively demonstrated that Real-World Data (RWD) can provide vital insights into current clinical practices.
  • The panel raised several comments on other aspects of the application including:
     
      • Further clarification regarding the treatments available to ILC patients and how this will inform the inclusion and exclusion criteria.
      • The panel inquired about the methodology that will be used for patient stratification.
      • The group discussed the study's potential to shape national guidelines in the future.
      • The panel discussed approaches to sharing findings with patients on a national level.

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