Data Access Proposal Request
Flatiron Health UK RWD Products
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Breast Cancer
Attendees
Flatiron Health UK
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Adam Manhi (chair)
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Liv Bryan (programme manager)
Research Transparency Panel
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Trishna Bharadia (patient)
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Hayley Hall (lay)
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Shira Peleg Hasson (clinical)
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Jennifer McCaffery (lay)
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Thomas Smith (patient)
Conflicts of interest
No conflicts declared by panel
Decision outcome
Approved
Summary of discussion
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Lay summary was clear and comprehensive, providing detailed context of the disease and treatment landscape (incl.statistics)
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Use cases were strong and well explained with clear objectives and specificity around how real-life patient benefit can be delivered
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A concise summary of analytics approaches and rationale by use case highlighted
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Clinical and commercial benefits clearly linked to addressing unmet needs in patients
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The panel raised several comments on other aspects of the application including:
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Desire to see specific unmet needs within each use case description
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Further explanation desirable around the potential benefits and impact of research on EDI and underrepresented populations
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More direct linking of target outputs to patient benefit (e.g.patient/lay-focused channels)
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Examples of third party companies (which provide data analytics support) desired
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