Research Transparency Panel Meeting Summary

Comprehensive lay summary using understandable, plain language
Broad number of use cases selected and evidenced to demonstrate patient benefit
A concise summary of analytics approaches and rationale by use case highlighted
Research benefits clearly outlined for patients, but also for the UK healthcare ecosystem (e.g. cost-effectiveness assessment)
The panel raised several comments on other aspects of the application including:
- Specific examples of the current unmet needs across tumour types would have been helpful
- Content and language was lengthy at points and could benefit from being more concise
- More clarity needed around the potential impact of RWD insights on specific patient cohorts and their treatments/outcomes
- Inclusion of examples of target outputs (e.g.conferences like ESMO) where insights will be shared further
- Full completion of the form required (i.e. the applicant had missed a verification step in the form inadvertently)

Roche